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How to deal with constant pain for years

Chronic Pain | Last Active: May 26 9:58pm | Replies (79)

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@bebold

I measure against myself only. I'm glad I was chosen for this difficult live because I was the better choice. I don't have children to raise. I am only responsible for myself. I have a high pain tolerance and by now a higher distress tolerance than many average folk - like most of us here. I don't love my life by a long shot but I'm content with less. Many would be more miserable than I. I don't wish this on anyone but I try to be optimistic sometimes and at least feel I was the right person for this if someone had to get it.

Feels like crazy thinking but I can't negate my feelings by telling myself others are worse. Negating our feelings is a world crushing depression into my life.

I think its ok to mad to have no shoes when others have no legs. I don't think its ok to complain they aren't gold or spend $1,000 to have someone elses name on them.

Its ok to use sadness and anger to cope. My problem is I've run out of "cope."

I read the words "constant pain" in the title and it soothes me. Because so very few understand that people actually DO live in constant pain. For some, its just inconceivable. I must be exaggerating! So I read here I'm not alone. My pain is valid because YES, it is possible to live in constant pain. This is year 45 of constant pain and I've let myself, for the first time in my life, be out of the closet about pain.

Self validating rather than always questioning if I'm just a big baby. Mayne its not real. How can anyone REALLY be in constant pain? When I know people dont believe ne, I question if its real either.

This year I've actually said out loud "every second, of every minute, of every day for FORTY FIVE years, I've been in pain."

Yes, be, its real and I'm not asking for pitty, I want people affected by that sentence tho. It helps us all to be recognized and people to say "wow" and let that sink in. I've put myself so deep in the pain closet, nobody in my life knows except my therapist. So when I say I can't come to your bday party, you might think I'm making an excuse because they have no idea. I've not done myself any favors. I'm coming out. I'm in constant pain. Yes its real. But please make me part of your life even if I can't come sometimes.

I think me validating constant pain helps me and lets people see me and feels brave to say weirdly but we all spend so much of our energy protecting people from our pain. I did it yesterday. I don't want my family who all live 1000 miles away to feel bad they can't help when they ask hiw they can, and they could actually, I just
dont tell them how. " (send money so I can hire a house keeper to help with laundry, dishes...)

They have the means and gladly would but can't let myself ask. I don't want to live anymore but oh, don't worry about me, I'm fine."

Its complicated isn't it?

Meanwhile I got my sheets changed last night. Was good.

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Replies to "I measure against myself only. I'm glad I was chosen for this difficult live because I..."

It is very complicated! Thank you for articulating your feelings because they will help others, including myself.

You are brave and I admire your obvious work with a therapist. You definitely are coping, more than you realize or maybe give yourself credit for.

Two words really stuck out to me in what you wrote:
Optimistic
Self-validating

Congrats on working towards a level of acceptance and sharing yourself on Connect. I see you!

God Bless You! There is great comfort in saying to others that care, how we feel. It is a release and almost always you will get positive feedback on here from others that are hurting.

You are a brave soul. I am so sorry that you have been in constant pain for so many years.

It's so hard to explain to others that you are in constant pain or are tired all the time from the pain. Actually, explaining your ailments all the time is tiring I find. I journal a lot and pray and have 3 close friends I can share with. I hope you have at least 1 close friend to share your heart with. Yes, my friend, it is complicated.

I'm not going into my "pain" because this is your time to share and I admire your honesty and you are a very strong individual that pushes forward by doing "the next thing"....like changing the sheets.

I am praying for you. I empathize with you and I care. Please keep me posted.

@bebold
I so feel everything you said and you are not alone! Some days I want to scream out loud “I am not Okay!” because it is hard for people to empathize with pain if they are not experiencing it because it is invisible to them. I also focus on the small, simple things since I am very limited. I am 54 and a single parent of a 14 year old son. He gives me a purpose to push myself through the pain. I lost my job and unable to work now. Hard to afford health insurance and not sure if I will get approved for disability. I am just taking one day at a time and asking God to give me His strength because I am hanging on by a thread most days.