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Low Platelets: Diagnosis to be confirmed
Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)Comment receiving replies
I was in the hospital in September of 2023 with they told me Ischemic Colitis was there for 3 days and sent home. Two days later my husband took me to another hospital in Jackson,Ms they said I had a blood clot in my upper colon restricting the blood flow that’s why I was having severe stomach pain and bleeding from the rectum. I had two stents done in April of 2023 they found a blood clot in the stent in my lower addomin. Then 2 days later they found two more blood clots in my right arm one in Basilic Vein and one in the Cephalic Vein. Was in the hospital for 8 days that time. Was put on Elaquis 5mg 2x a day. Then in December was taken back to the hospital having an allergic reaction to my Ladinapril and bleeding from the rectum again. Had another blood clot in my left leg. This time they installed a IVC filter. Was there this time for 4 days. Went to a hematologist/ oncologist he done a lot of blood work. I have still been seeing the hematologist/ oncologist he told me on the May 15,2024 I didn’t have a blood disorder but would be on a blood thinner more than likely the rest of my life and I did not have a blood clotting disorder and he had no answer for me as to why I had a total of 5 blood clots. In 3 months. He has scheduled me for a Iron infusion on June 10,2024. I have told him my mother had blood clots really bad she was on Coumadin then on Warfarin. I am looking for a doctor who can tell me what is triggering the blood clots in me. And help get me some answers to why I am having blood clots all of a sudden when I have never had any until September of 2023. The Mayo Clinic has been recommended to me I just hope to get some answers.
Replies to "I was in the hospital in September of 2023 with they told me Ischemic Colitis was..."
Hi @mwhitaker, if you would like to seek a second opinion at Mayo Clinic, here is the link to request an appointment http://mayocl.in/1mtmR63
As @slkanowitz mentioned, they can walk you through the process of submitting your testing results for review, etc.
Naturally, as fellow patients here on Mayo Clinic Connect, we cannot provide a diagnosis. But we can help you to figure out what questions to ask medical professionals.
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I am not sure why you were told you don’t have a clotting disorder as your posted labs show an elevated anticardiolipin antibody and high DRVVT (lupus anticoagulant), both characteristic of antiphospholipid syndrome (APS). This is a pretty common condition that predisposes to blood clots. It can occur by itself or in conjunction with autoimmune disorders such as lupus. Yes, with your history of multiple blood clots and these lab abnormalities, you will need to be on a blood thinner for the rest of your life. You should also be evaluated by a rheumatologist to rule out lupus or other related autoimmune disorders. I am baffled by your hematology doctor’s comments and would recommend you take these lab results and relay your history of clotting episodes to a different hematologist. You need a proper diagnosis and explanation of this syndrome as well as rheumatology evaluation, particularly if you have any family history of autoimmune disorders or symptoms of a possible AI disease.