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Is Camzyos effective long term?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (48)

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@manuelpo

After FDA approval, camzyos has only been available for 2 years and 1 month. The approval required a lot of testing due to the side effects can be too risky for some people. I do not think anyone other than a Cardiologist with that much 2 year 1 month experience on this medicine can accurately predict how long it will take. The pressure, the size of the septum and other factors in each one's hearts is very different and unique. So I do not think anyone can predict how long it takes unless there is someone who was treated and successfully say " I took camzyos for .... years or months and I do not need it anymore". All I know is that this medicine is wonderfully working on me and I am willing to take it till my last day on earth. I hope everyone is successful on this camzyos treatment. I am very happy with camzyos.

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Replies to "After FDA approval, camzyos has only been available for 2 years and 1 month. The approval..."

I started at 5mg a year ago and felt better but echo did not improve. I requested a higher dose of 10mg. Same story. Finally requested 15 mg after doing pharmacogenomic test which showed I’m a rapid metabolizer of Camzyos. Gradient came down dramatically. I’m no longer a candidate for surgery. And I feel so much better than a year ago. We are all at the front end of experience with this new drug.