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← Return to Tamoxifen and Fibromyalgia
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Hi, I'm in the same position. I'm worried at the idea of 10yrs on Tamoxifen.
I've had Fibro ,CFS & and migraines for over 25yrs which was helped by HRT. All pre my cancer & treatments.
All HRT was stopped immediately I was diagonosed with Invasive Ductal Cancer (IDC) & was given Tamoxifen as you say keep growth & recurrence at bay. But the downside of Tamoxefen is horrid my quality of life is worsening with increased muscke & joint pain, fatigue & Migraines.
Pre my cancer at menopause I had HRT and as you say the Estrogen was a total GAME CHANGET improving my Fibro joint pain, fatigue. It was noted also my bone density improved & my dexa scans became normal again.
I'm now very worried about long term Tamoxifen.
Are there any reports, trails etc on the affects on Fibro, fatigue, joint pain & Migraines.. etc
Likewise I'd like to hear from others with Fibromyalgia, Me & CFS to see how they are on Tamoxifen.
I'm finding every day a challenge not because of cancer etc...but because of the awful pain & fatigue I'm positive it's worsening with daliy Tamoxifen. But I've no options med wise as the other medications badly affect my bone density so are a no no...!!
Replies to "Hi, I'm in the same position. I'm worried at the idea of 10yrs on Tamoxifen. I've..."
Hi
I tried tamoxifen for 6 days no thanks. Horrid side effects. I have fibro. Osteopenia, compression fracture, heart issues amongst other things. I had stage 0 dcis so my oncologist agreed not worth the risk. If it's diminishing your life why stay on it.stopping estrogen causes serious issues. I don't feel it's a guarantee for me
Hi
I took tamoxifen for 6 days
The side effects were horrid. So I made a decision for my health and I stopped it. I am not taking any of the AI's. Not worth my health to take a med that does so much damage to your quality of life. I am er/or + her2- stage 0. Both my oncologist are fine with my decision.
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Hi
I tried the 5 mg of tamoxifen 6 days was all I could tolerate I met with my oncologist this past week and because my side effects were so severe he agreed that I was not the medication I should take. We discussed the AIS but because I have osteopenia already and a fracture in my spine along with other health issues I decided not to take anything. Although my cancer was dcis Erpr positive her to negative stage zero he is fine with me doing nothing and he said if you wanted to try it down the road you can it's totally up to you but I do not want you to suffer daily. To me it's only logical if you take away all the estrogen your body is going to suffer horrendously I cannot understand why after all these years they have come up with something else for breast cancer that is hormone positive