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Myelodysplastic Syndrome and Sjogren's

Blood Cancers & Disorders | Last Active: May 24 4:18am | Replies (16)

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@sjjs

Hi all
I just joined and I have MDS. It is believed that I may have sjogrens too by my symptoms only so far. I understand that a firm diagnosis is made by having a lip biopsy. I also am hypothyroid and have the MTHFR genetic snip.
I live in west Los Angeles and again just joined today.

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Replies to "Hi all I just joined and I have MDS. It is believed that I may have..."

Welcome to Connect @sjjs You popped into the perfect support group with members like @suetex who also have MDS and Sjogren’s. How long ago were you diagnosed with Myelodyplastic Syndrome? Are you on any treatment program to slow the progression?