I do not have this, but I have looked into it a lot. I have so many symptoms. Can you tell more about yours?

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion:

- Waldenstrom macroglobulinemia (WM): Deciding treatment options
https://connect.mayoclinic.org/discussion/wm-treatment-options/
I did this so you can read previous posts and connect easily with other WM members like @ejrquast @aann @nsh @weissmntc and others with a similar diagnosis.
You might appreciate this post by @loribmt in particular https://connect.mayoclinic.org/comment/981542/

If you use the group search, you can find additional discussions as well.

@cpu, is this a new diagnosis for you?

My husband was diagnosed three years ago though I believe he had it for several years prior. After three different failed treatments, he was put on Brukinsa as a last resort before chemo, and that is working!

I was diagnosed with WM in Dec 2023. I have completed 5 rounds of B-R and numbers are improving. One more to go in June.