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Replies to "Has anybody been prescribed Imuran when the prednisone Mestinon combo for MG doesn't seem to be..."
Autoimmune Diseases | Last Active: May 31, 2024 | Replies (20)
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Has anybody been prescribed Imuran when the prednisone Mestinon combo for MG doesn't seem to be working? My insurance has been very slow authorizing this and my doctor says it can take six months before the affect of the new medication actually helps.
Replies to "Has anybody been prescribed Imuran when the prednisone Mestinon combo for MG doesn't seem to be..."
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Haven’t been prescribed Imuran. But have tried Prednisone and and (pyridostigmine) mestinon but those didn’t work well for me.
Did have surgery to lift lid and this improved vision but lid still droops.
Also have Cicatricial Pemphigoid. Taking A generic for Cellcept (Mycophenolate) which is something I can stay on long term, while prednisone is not a long term option for this condition. This drug has not help my OMG right eye only. If you had success with prednisone may Cellcept could help too??
I had a CT scan to check for a thymoma, but that was negative. I did hear if you do have a thymoma there has been success against the generalized MG.
News for us both, the longer it stays ocular (2+yrs) there is an 85% chance it will not progress to the rest of our body.
I got appointments for tests and doctors at Mayo on July 29th for second opinion on all.
Will post results after that.
Good Luck