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Losing weight due to MAC

MAC & Bronchiectasis | Last Active: May 20 5:22am | Replies (60)
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@deborahhow

I have MAC and am wondering if I should go on the Big Three or try immunotherapy instead. I'm very thin and am worried about weight loss if I go on the drugs. Do they really work to get rid of MAC? I haven't heard many success stories. Thanks for any input. @debinCali

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Replies to "I have MAC and am wondering if I should go on the Big Three or try..."
Sue, Volunteer Mentor | @sueinmn | May 17 10:53pm

Hi Deb, Welco e to our MAC support group - there is so much information here, it can be hard to know where to begin. Let me give you a few links to follow that might be helpful to you
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/
Can you explain what you mean by immunotherapy? At this time, there is no proven or approved immune treatment for mycobacteria infections.

IF you infection is not severe, there are more conservative treatments you can try such as airway clearance with 7% saline .

How long ago was your infection diagnosed?
Sue

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sisterpulse | @sisterpulse | May 20 5:22am

Hello Deborah
I lost weight, appetite due to Be and MAC1
Dietician advised Ensure, made by Abbott.
I have put in a few pounds have more energy , but some fatigue persists in the afternoon.
Trying to avoid the big 3 with 7% saline neb and chest clearance twice a day. Another Ct Scan soon so we’ll see.
If I have to I guess I’ll have to accept the big 3 .it works for some people. In the meantime I believe other drugs are on trial.
Best wishes
SP

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