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Systemic Mastocytosis: Does anyone have bone pain?
Blood Cancers & Disorders | Last Active: May 19 12:42pm | Replies (8)Comment receiving replies
Hello @christyann715 - I moved your discussion and combined it with your existing discussion titled, "Systemic Mastocytosis Bone Pain" - https://connect.mayoclinic.org/discussion/systemic-mastocytosis/.
I did this so you could meet members @repairgirl, @nabravo, @dolan, and @frenchie333 who have all discussed mastocytosis on Connect as well.
@christyann715, you had mentioned your son was dealing with so much pain he was using a walker to get around, has the pain been improved in any capacity?
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Thank you for asking! No his pain is still the same. It’s been so heartbreaking because he can’t & won’t go anywhere…he’s doesn’t really leave his bed or the house. Anytime he does, he ends up bed ridden because it’s too much on his body. I’m trying to get him to the Mayo Clinic in Rochester, Minnesota. They have a special Eosinophilic disease & systemic Mastocytosis program there. I spoke to the clinic & I have to get some special testing done for him before we can go. Praying we can get some answers to help him!