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Is Camzyos effective long term?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 22 5:45pm | Replies (41)

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@susanml

Good day
I started on 5 mg of Camzyos in December 2023. I really felt well with this new medication and my results proved likewise. Following the protocol, my cardiologist reduced my dosage to 2.5mg. However I was not feeling as well as before, on the halved dose After three months on 2.5 mg and the echocardiogram, I requested that I go back to 5 mg, which the cardiologist agreed to. I am still overwhelmingly tired and some days are worse than others. My shortness of breath has improved but not the fatigue. I’ll see if the 5 mg which I just restarted makes an improvement. I too have no idea how long I can stay on this drug, and if the dosage needs
to be periodically increased.
Be well

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Replies to "Good day I started on 5 mg of Camzyos in December 2023. I really felt well..."

Good morning! I am also feeling exhausted. Not sure if it is because I teach 4th grade and school is about to end, so very very busy, or if it is because I need to go back up to 5 mg. If I don't start to feel rested once school is out, I am going to ask to go back up before my August visit. Let me know if you start to feel better. I remember feeling SO good on 5 mg.!