1. < Neuroendocrine Tumors (NETs)

pNET with liver metastases: What is necrosis?

Posted by justme54 @justme54, May 4 12:43pm

Hi,
I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk to dr afterwards yet. One of the findings said that the imaging was indicative of necrosis. Am wondering if anyone else has had that?

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vinnie694 | @vinnie694 | May 4 2:37pm

I too have grade 2 NET liver metastasis but there was no mention of necrosis. Sorry I can’t help you there..

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pavlina60 | @pavlina60 | May 5 5:53pm

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard of nectosis... Keep asking questions!

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Liz | @lizzyeastwood | May 13 11:38pm

Hi, I’m a little late into this discussion. Yes, I had a distal pancreatectomy 4 years ago. My post operative leak/drain had necrosis. In my case it didn’t seem to alarm any of the drs and the issue never came up again. Hope this helps.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 16 3:02pm

Generally speaking, necrosis is the death of the cells in your body tissues. Necrosis can occur due to injuries, infections or diseases.

As @lizzyeastwood said, necrosis may be nothing to worry about. But they may wish to investigate further to rule out infection.

@justme54, have you had a chance to ask your doctor about the findings? Were they concerned about the appearance of necrosis?

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1 reply
justme54 | @justme54 | May 16 3:46pm
In reply to @colleenyoung "Generally speaking, necrosis is the death of the cells in your body tissues. Necrosis can occur..." + (show)
@colleenyoung

Generally speaking, necrosis is the death of the cells in your body tissues. Necrosis can occur due to injuries, infections or diseases.

As @lizzyeastwood said, necrosis may be nothing to worry about. But they may wish to investigate further to rule out infection.

@justme54, have you had a chance to ask your doctor about the findings? Were they concerned about the appearance of necrosis?

Jump to this post

Oncologist said biggest issues were possibility of infection, abscess which may need draining or could rupture. He also said this could signal a change from grade 2 to 3.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 16 3:51pm
In reply to @justme54 "Oncologist said biggest issues were possibility of infection, abscess which may need draining or could rupture...." + (show)
@justme54

Oncologist said biggest issues were possibility of infection, abscess which may need draining or could rupture. He also said this could signal a change from grade 2 to 3.

Jump to this post

What are the next steps for monitoring?

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1 reply
justme54 | @justme54 | May 17 8:43am
In reply to @colleenyoung "What are the next steps for monitoring?" + (show)
@colleenyoung

What are the next steps for monitoring?

Jump to this post

monitoring symptoms such as fever/chills for infection, pain for abscess, more pain for rupture.

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pavlina60 | @pavlina60 | May 18 12:57pm

I have been on Lanreotide for 14 months after pNET with liver metastases. Right after surgery my blood sugar became normal, A1C below 6. Last month my A1C was 6.6, and my BG is around 130... I try to eat sensibly, not much carbs, follow pNET diet. Anyone with similar experience after LAN injections? I have CT scan on May 28, and am meeting my oncologist on June 3rd.

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user_ch2456688 | @user_ch2456688 | May 20 10:25am

I have a NET but what’s
a pNET? I have liver metastasis too. Could you tell me about your surgery and who did it?
DJN diagnosed spring 2024

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justme54 | @justme54 | May 20 10:39am

Hi, PNet is one that starts in the pancreas then spreads to other parts like the liver for me. I have not had surgery for mine since it is already advanced.

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