I don’t think I tested for MG but I think it’s more quickly progressive and bilateral.. I have been twitching for 2.5 years and slowly been losing function..
It started with my tongue getting tired when eating years ago, then clearing my throat a lot, and mild paresis of my vocal cord, and now full paralysis of my left vocal cord. My left pinky is also weak and left leg.. I have a tremor in my left facial muscle when I do a half smile.. my uvula is also deviated which I believe indicates cranial nerve weakness..
I agree with the vagus nerve as I also have pre ventricular contractions which is affected by vagus nerve from what I looked up..
I’ve seen 5 neurologists and had 2 EMGs. I will see a neuromuscular next, and am really certain I will get an als diagnosis soon enough..
I think something with Covid triggered it, als can be triggered by virus and even reactivated hold viruses which Covid does unfortunately..
There are many studies on covid and neurodegenerative affects and triggers that it does to the body. I’m glad you recovered but mine has been a slow downhill decline, I can only hope my fiance doesn’t follow my steps as she is only 26 and I am 30, but it doesn’t look good. Even if it isn’t als the progressive paralysis and weakness will eventually be the end of me unless they figure it out.
You are right.Covid did trigger it.I am in bad shape and I feel bad that you are going through the same thing.I have lost strength in the trunk of my body along with diaphram/sternum.Even if I had to throw up I could not.I thunk it is the loss of strength and vagus nerve damage.The neurologists I have talked to have never heard of such a thing.I barely have a gag reflex anymore.At the beginning I felt like a human vegetable.I could not swallow,go to the bathroon,sleep.I did have them test for Epstein Barr and my titters were extremely high.I know that before I was diagnosed with Hashimito's that is all that could find was elevated Epstein Barr titters.My neurologist is sending me to a team of neuromuscular doctors since he can't figure out what is wrong.I am praying for you and your Fiance.It is not fair that we have to go through this.I was only on the steroids for a very short amount of time since my primary was not exactly sure what I had,but It did give me strength.During that time I thought it was the end for me.I am just wondering if Ivig infusions could possibly help us.I will let you know if I hear on any new possible treatments.