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Brain Implant:D.B.S. modulation. Post Stroke. Thalamic Pain Syndrome

Stroke & Cerebrovascular Diseases | Last Active: May 31 6:34pm | Replies (9)
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@pmorgigno

Hello,
Neurosurgeon performed DBS back in Oct. 2023. Trying to manage severe pain from Thalamic Pain Syndrome
- Dejerine-Roussy Syndrome; post stroke.
Current Kaiser docs only experienced in DBS for motor skills Parkinsons issues not sensory pain issue.
Have been referred to UCLA neurology for consult with doc experienced in modulation of device specifically for pain.
Current: No pain meds currently prescribed = All have been tried and found ineffective. Pain and Seizure meds.
Pain: Electrocution feeling thru face, neck, down thru arm, groin and leg. Hot burning, frostbite feeling along with needle pokes.

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Replies to "Hello, Neurosurgeon performed DBS back in Oct. 2023. Trying to manage severe pain from Thalamic Pain..."
Helen, Volunteer Mentor | @naturegirl5 | May 18 7:33am

@pmorgigno Thank you for the additional information. That information will help other members to support you. It's great that you have been referred to UCLA to see a physician who specializes in thalamic pain syndrome. Do you have an appointment scheduled with the new neurologist at UCLA?

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