Husband’s CA19-9 plunged by 90%

Posted by denip @denip, Mar 18 7:13am

Hi,
My husband just finished 11 rounds of chemo with oxaliplatin and irinitican. During this time, he also has been working with a nutritionist to clean up his diet, taking some Rick Simpson cannibis oil, doing red light theray and high dose Vitamin C drips. His CA19-9 plunged by 90% during the six months and after a recent CT scan, the surgeon scheduled Whipple surgery. The surgeon feels there is a more than 50% chance he will be able to remove the entire mass. Leading up to surgery, my husband is gaining strength after chemo and keeping up with the holistic therapies he has been doing during his treatment regime. The surgeon expressed that only 15% of his patients have the response rate to the chemo my husband has had. We believe that all of his complimentary efforts are paying off. Anyone else have this kind of success with chemo alone?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@lilliejane2

Hello! And congratulation on this victory! He will get through the surgery with flying colors!
I just finished a modified folfirinox plan, but without the oxaliplatin and on a smaller dosage of the rest of the cocktail.
I am doing well. Ca19 9
Has gone down from 650 to 52 in 5 months.
I do take alternative treatment too. I have been taking Holy Basil extract, cryptolepsis, black seed oil and fenbendazol. It's hard to say what kind of impact the chemo alone has given me.
This is me second bout with chemo. The first was 27 months ago. Had whipple and gemcitabine with abraxane.
All I can say is keep moving forward through the hard times. Just keep moving. You'll make it!

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Might I ask what Fenben you are using? God Bless for a healthy recovery.

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That's great! Wishing you all success. My husband's numbers have dropped 98% with chemo in the past 6 months... however, since he started at 39000.... his latest numbers are still over 600. He just finished #12 and will have a petscan next week, and then the dr will decide what to try next. His cancer was at stage 4 having spread to lungs, lymph nodes, and bone/spine. So we are thrilled with the falling numbers, but still waiting to see how that corresponds to petscan results. The CT scan results have been "good"... but really not much shrinkage of tumors... just no progression of disease which is good.

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@sheridanb

That's great! Wishing you all success. My husband's numbers have dropped 98% with chemo in the past 6 months... however, since he started at 39000.... his latest numbers are still over 600. He just finished #12 and will have a petscan next week, and then the dr will decide what to try next. His cancer was at stage 4 having spread to lungs, lymph nodes, and bone/spine. So we are thrilled with the falling numbers, but still waiting to see how that corresponds to petscan results. The CT scan results have been "good"... but really not much shrinkage of tumors... just no progression of disease which is good.

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No progression of the disease is a victory! Wishing your husband good petscan results. My husband had a failed Whipple a few weeks ago. When the surgeon got in to do the procedure, the tumor had shrunk more, but inflammation was around the blood vessels involved and he couldn’t distinguish between the inflammation and the blood vessels. He felt it too risky to move forward so he ended the surgery. However, when my husband went for blood work last week for follow up, his markers had decreased even more, which was a bright light after the huge disappointment of the failed surgery. The oncologist was thrilled. We are looking into adjuvant therapies and my husband is considering radiation. He is not sure he wants to do it. He told the docs he wanted a couple of months break to heal and mull things over. In the meantime, he will do the complimentary therapies. If he has further shrinkage and shows a positive result when he is scanned in a couple of months, he will probably say no to radiation. Wishing you the best!

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@suzannesiebert

Might I ask what Fenben you are using? God Bless for a healthy recovery.

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Hi, I’m not sure what Fenben is. Can you give me a little more information?

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@denip

Hi, I’m not sure what Fenben is. Can you give me a little more information?

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someone said they used fenbendazole--sorry thought it was you

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@suzannesiebert

someone said they used fenbendazole--sorry thought it was you

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Ah, gotcha! My husband did 11 treatments of Folfirinox treatments and a bunch of complimentary therapies.

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@denip and @suzannesiebert, fenbendazole is an antiparasitic drug used in veterinary medicine to treat animal gastrointestinal parasites. There are many stories circulating on social media about using it to treat cancer because preliminary research is investigating the use of fenbendazole in cancer.

The use of fenbendazole for pancreatic cancer is still experimental, and more studies are needed to determine its success and safety in humans.

You can read more here:
- Can Antiparasitic Drug Fenbendazole Treat Pancreatic Cancer? https://www.healthline.com/health/pancreatic-cancer/fenbendazole-for-pancreatic-cancer

If considering fenbendazole, please talk to your oncologist. All information shared by members on the Mayo Clinic Connect is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicince is offered at many cancer centers of excellence, including Mayo Clinic.

Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

@denip, do you work with a provider in integrative medicine?

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@colleenyoung

@denip and @suzannesiebert, fenbendazole is an antiparasitic drug used in veterinary medicine to treat animal gastrointestinal parasites. There are many stories circulating on social media about using it to treat cancer because preliminary research is investigating the use of fenbendazole in cancer.

The use of fenbendazole for pancreatic cancer is still experimental, and more studies are needed to determine its success and safety in humans.

You can read more here:
- Can Antiparasitic Drug Fenbendazole Treat Pancreatic Cancer? https://www.healthline.com/health/pancreatic-cancer/fenbendazole-for-pancreatic-cancer

If considering fenbendazole, please talk to your oncologist. All information shared by members on the Mayo Clinic Connect is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicince is offered at many cancer centers of excellence, including Mayo Clinic.

Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

@denip, do you work with a provider in integrative medicine?

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Hi,
Thanks so much for this information. Yes, we work with an integrative oncologist along with my husband’s medical oncologist. He runs everything he is doing past his medical oncologist and gotten her blessing on everything he has discussed with her so far. We have not considered fenbendazole and probably won’t until there is more data available. So far, the complimentary therapies we have used are backed by decades of research and data.

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@denip

No progression of the disease is a victory! Wishing your husband good petscan results. My husband had a failed Whipple a few weeks ago. When the surgeon got in to do the procedure, the tumor had shrunk more, but inflammation was around the blood vessels involved and he couldn’t distinguish between the inflammation and the blood vessels. He felt it too risky to move forward so he ended the surgery. However, when my husband went for blood work last week for follow up, his markers had decreased even more, which was a bright light after the huge disappointment of the failed surgery. The oncologist was thrilled. We are looking into adjuvant therapies and my husband is considering radiation. He is not sure he wants to do it. He told the docs he wanted a couple of months break to heal and mull things over. In the meantime, he will do the complimentary therapies. If he has further shrinkage and shows a positive result when he is scanned in a couple of months, he will probably say no to radiation. Wishing you the best!

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Thank you. That must have been really disappointing when the surgery was stopped. Though sounds good on the blood work. Dan's tumor is in the tail of the pancreas ... plus had spread so much that no one has ever mentioned surgery. Though we will ask about it. Had to get through those 12 treatments first, and yes... no progression of the disease is victory. Just hoping that whatever comes next allows him to get off the couch. This chemo kicked his butt. A year ago he was whitewater kayaking in big water. And was very active all his life with hiking, skiing, etc. So to be this fatigued has been pretty tough. Good luck to your husband and to you.

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Hi denip,
Can you share where you found Rick Simpson cannabis oi, and the brand you used? I was told it is extinct nowadays.
Kind regards,
LatteChic

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