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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

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@bijou68

Thank you for sharing: all your observations are valuable!!! I will note the name of the RX for future use... trials and errors when it comes to soothing the skin when having an outbreak. The third time was the charm! hardly any itching or burning. I will look up the protocol as I don't remember it and that was like 3 or 4 months ago, and will get back to you. I have a protocol for numbing the very painful biopsies after 10 of them... Oxycodon: just one pill 1 hr before biopsy and lidocaine 5% both RX. Then the doctor comes in and gives about three lidocaine shots and I don't feel a thing after that... Basically as we know so far is that we don't know the outcome of this strange cancer.. May we all be blessed for a good outcome.

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Replies to "Thank you for sharing: all your observations are valuable!!! I will note the name of the..."

Very new to this group. I am interested to hear about your protocol.
I'm thankful for your biopsy protocol after having just one! They are brutal. How long does this relief last. I had painful symptoms for over a week.
Thank you so much for helping us newbies.