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Loss of taste after liver transplant

Transplants | Last Active: May 23 7:48am | Replies (42)

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@123sandy

hello, @rosemarya
Thank you so much for your reply. My transplant was 1yr ago yesterday. I’ve had so many of the same reactions that you’ve described. The weight loss, worrying about a g-tube, the smell of meat. I can’t watch fast food commercials without having a gag reflex. Also, whatever I’m eating is dry and makes it harder to get down. Your reply made me feel much better. That it’s not in my head. I don’t remember telling the team about these reactions but my 1 yr visit is in 2 weeks and I will bring them up after getting your reply. Thank you again. I did pursue the problem with my hearing loss but it kind of felt like they thought I was a little crazy. However the tests did show loss which was sort of a two edge reaction. I felt better that I was validated but not that much better because I would be wearing hearing aids from then on. Life.
Have a very pleasant day @rosemarya. I was thrilled to see your reply.

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Replies to "hello, @rosemarya Thank you so much for your reply. My transplant was 1yr ago yesterday. I’ve..."

Congratulations on your transplant anniversary! Did you do anything special to honor the day? I hope that is the first of many more.
You brought back memories when you said you gag at fast food commercials - I had forgotten that I used to feel that way, too. I still hate the smell of the fried foods at outdoor festivals. Whenever we go to an outdoor concert of activity, I pack my own lunch. I wonder if this is because gall bladder was removed along with my diseased liver. (?) I might put that on my list of questions for my transplant team next year when I have my annual visit!

Sandy, I hope that you have a good check-up. And I look forward to hearing from you afterwards.

Here are a couple of discussions that are also in the Transplant Support Group that I think you will enjoy. I invite you to share something from your own experience!
Do you have a photo to share?
- Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Here are some ideas for celebrating a transplant anniversary. Do you have an idea to share?
- Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/transplant-anniversary/

Good Morning, @123sandy. I want to let you now that I am thinking about your upcoming appointment. I rememeber my 1st annual visit to be a mixture of emotions as I had a difficult pre transplant period and it was frightening to be faced with those unccomfortable memories. I did shed some tears, but quickly recovered and my mood turned to joy and happoiness! I learned so much about my condition and how to continue forward with maintaining my health. I hope that you will have a good experience, and that you will come away with new knowledge and confidence as you progress forward.

If I might add a suggestion: Make a list of your questions so that you can ask your transplant team while you are there. Do you have to travel a distance with overnight lodging? Have you received a schedule of appointments/tests yet? Will you be at Mayo?