Connect
← Return to Systemic Mastocytosis: Does anyone have bone pain?
Discussion
Systemic Mastocytosis: Does anyone have bone pain?
Blood Cancers & Disorders | Last Active: 15 hours ago | Replies (15)Comment receiving replies
Does anyone have systemic Mastocytosis and experience extreme lower back/bone pain? Have you had a bone marrow biopsy? Please share your experiences! Thank you
Replies to "Does anyone have systemic Mastocytosis and experience extreme lower back/bone pain? Have you had a bone..."
I have extreme lumbar region pain. Sometimes during a Flare it's so severe I am reduced to a wheelchair. Bone Marrow biopsies will only confirm what you intintively already know, W he undergo such a extremely painful process?
Connect
Hello @christyann715 - I moved your discussion and combined it with your existing discussion titled, "Systemic Mastocytosis Bone Pain" - https://connect.mayoclinic.org/discussion/systemic-mastocytosis/.
I did this so you could meet members @repairgirl, @nabravo, @dolan, and @frenchie333 who have all discussed mastocytosis on Connect as well.
@christyann715, you had mentioned your son was dealing with so much pain he was using a walker to get around, has the pain been improved in any capacity?