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Systemic Mastocytosis: Does anyone have bone pain?

Blood Cancers & Disorders | Last Active: May 19 12:42pm | Replies (8)
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@christyann715

Does anyone have systemic Mastocytosis and experience extreme lower back/bone pain? Have you had a bone marrow biopsy? Please share your experiences! Thank you

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Replies to "Does anyone have systemic Mastocytosis and experience extreme lower back/bone pain? Have you had a bone..."
Justin McClanahan, Moderator | @JustinMcClanahan | May 17 11:28am

Hello @christyann715 - I moved your discussion and combined it with your existing discussion titled, "Systemic Mastocytosis Bone Pain" - https://connect.mayoclinic.org/discussion/systemic-mastocytosis/.

I did this so you could meet members @repairgirl, @nabravo, @dolan, and @frenchie333 who have all discussed mastocytosis on Connect as well.

@christyann715, you had mentioned your son was dealing with so much pain he was using a walker to get around, has the pain been improved in any capacity?

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