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Is Camzyos effective long term?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 22 5:45pm | Replies (41)
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@yayee

greetings - I am new member here and currently dealing w/obstructive hypertrophic cardiomyopathy so my cardiologist started me on Camzyos (almost finished with 3 months) and getting echocardiograms every month. has anyone had a high gradient number? how about ejection fraction? thanks in advance!

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Replies to "greetings - I am new member here and currently dealing w/obstructive hypertrophic cardiomyopathy so my cardiologist..."
Debra, Volunteer Mentor | @karukgirl | May 16 9:08am

Hello there @yayee, and welcome to Mayo Connect. I'm glad you found the Hypertrophic group. Have you had a chance to poke around on here? This is a link to the Camzyos group, where you will find a ton of information shared by others just like you who are also on Camzyos. https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Everyone is unique and each one of us reacts to things differently, but learning as much as you can about your condition will help you help yourself and your doctor.
How long have you known you had HOCM? Have your echocardiograms shown improvement? Do you feel better than you did before you went on Camzyos?

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Justin McClanahan, Moderator | @JustinMcClanahan | May 16 10:07am

Hello @yayee, I moved your comment to an existing discussion on Camzyos and its effectiveness long-term, titled "Is Camzyos effective long term?" - https://connect.mayoclinic.org/discussion/is-camzyos-effective-long-term/.

@kelliw, @par4rosy, and @hansj have all recently posted updates about their experiences on Camzyos.

@yayee, how are you tolerating the medication?

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