1. < Autoimmune Diseases

Lesions on the brain and autoimmune disease

Posted by bwalker433 @bwalker433, Jul 13, 2023

Does anyone else have lesions on there brain with there autoimmune disease? I have over 24 small 0.5 lesions on my brain and every specialist tells me they have never seen this before. My brain looks like a 70 year old brain and I'm 33.

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elisabeth007 | @elisabeth007 | May 15 12:20pm
In reply to @sbrown293 "Welcome toMayo Clinic Connect. You will find a community of folks sharing their experiences in hopes..." + (show)
@sbrown293

Welcome toMayo Clinic Connect. You will find a community of folks sharing their experiences in hopes of helping someone else. Wishing you the best.

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have you scheduled a consultation at mayo?

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elisabeth007 | @elisabeth007 | May 15 12:22pm
In reply to @momma1960 "Thank you for this information, I see my neurologist in August as I also have Familial..." + (show)
@momma1960

Thank you for this information, I see my neurologist in August as I also have Familial Essential Tremor. And I am having so many other symptoms that I’m hoping she will actually check me out instead of just saying that it’s the tremor that is causing my other symptoms, which I don’t agree with. I have been researching my symptoms and they are symptoms of MS but she tells me that I don’t have that or Parkinson’s or MS. We all know our bodies and what is happening and they just don’t listen.

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have you considered a second opinion?

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tabuschlen | @tabuschlen | May 15 2:09pm

Accuracy is important 😊

I just was hoping that auto immune could be treated better,

Someone has demylenation, but it's not called ms, do they get the treatments and support?

I agree that they have Isolated different suspected strains of virus as different causes, but they don't treat said virus yet, and they do address the symptoms as to what is approved for that said disease with the almost identical presentation and repercussions,
So I have a problem with the treatment silos.

Hope everyone gets the dr recommended best treatment for them, and would never recommend otherwise.

Pointing out a medical bias to help certain diagnoses here.

Hope this helps someone get the right treatment and support

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donnyboy | @donnyboy | May 15 2:14pm
In reply to @tabuschlen "If you can get a diagnosis for MS, there's more medication approved, and a bigger support..." + (show)
@tabuschlen

If you can get a diagnosis for MS, there's more medication approved, and a bigger support network.... more research, it's essentially a demilenating autoimmune disease that can present differently in different people. Please consider getting a second opinion? Ms has good treatment options, and these other autoimmune diseases have similar issues, but different or fewer treatments.

Autoimmune sucks, sorry that you are going through this....

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@tabuschlen

Sorry, looks like a message directed to me that doesn't apply. I don't have MS and would not welcome a diagnosis to that effect. My diagnosis is Clippers.

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