Almost pure blood and blood clots in urine

Posted by so1frustrated @so1frustrated, Feb 5, 2021

Going through another episode of urinating almost pure blood (fresh looking) and passed a large blood clot yesterday. Have had CT scan and ultrasound and cystoscopy but nothing found so far. Also pain in left side/back that might be kidney pain. Anyone go through this? I have a call in to urologist and should hear back today. Also I had asked my NP for antibiotic, Cipro, which I took but on day 5 fresh blood showed up in urine again and I stopped. Asked for it in case of infection that might not be showing up. The last time I had gross hematuria and clots (and vomiting) the urologist's nurse saw me on emergency visit and prescribed nitrofur mac which appeared to clear it up, but started up again several weeks later. So frustrated and worried!

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@jelley06410

Did you have a cysto in the last 19 days? Were all the scans etc done in the last 19 days? With the understanding that everyone’s symptoms and results are different, I’d be very concerned about bladder cancer. The day after my husband reported blood in his urine, a cystoscopy was done and showed “gross hematuria” and HG T1 bladder cancer. Procedure done 4 days later and second to look for microscopic cells one month later. He’s on his 2nd of 6 BCG infiltrations and we are keeping our fingers crossed. Please get a second opinion! The recurrence of bladder cancer is very high as we know but 19 days of blood in urine and/or clots NEEDS a recent cystoscopy.

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Yes I’ve had a cystoscope about 7-8 days ago. I’ve had 2 Ct scans in the last week.
They say it show all clear
And no infections. They can see the blood now they suggest yet another cystoscope I’m so defeated

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