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SPK (simultaneous pancreas and kidney) transplants

Transplants | Last Active: May 16 8:41pm | Replies (77)

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@mariancauwel

@rosemarya I need ur help, she’s losing a little weight, trying she’s not terribly hungry, wants ti eat the best food for her new organs, what do I give her to nourish her and her new organs, she has kidney and pancreas, she had transplant 4/26, she doesn’t like ensure any can supplements, any ideas to help? Grateful for your thoughts, we are just so new, just to let you know, she’s thin, ate very clean mostly salad, nuts, fruits vegs, protein, chicken, turkey, peanut butter, now most doesn’t sound good to her. Thank you.

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Replies to "@rosemarya I need ur help, she’s losing a little weight, trying she’s not terribly hungry, wants..."

@mariancauwel, I am always happy to see a message from you and hear about your daughter's progress. I feel fortunate that I can respond as a recipient and as a mother. I know how we mothers, wonder and worry about our children, no matter what age they are. (How is that for unplanned timing with Mother's Day?)

It can be a slow process for a patient to regain weight and muscle tone after their transdplant surgery because of the rugged pre-transplant period, and the recovery from surgery. In addition there are strong medications that are required to keep the organs safe and healthy as they and our bodies get more comfortable with each other. Your daughter most likely does not have an appetite due to the medications (which will be adjusted over time as indicated by routine labs.)

She is just a few weeks after surgery, so as long as she is feeling okay, staying hydrated, and taking her medications, she is doing great. It is likely that her meds are the reason that her favorute foods don't sound good to her. If you are concerned about her nutrition, which is very important, please talk to her transplant coordinator. She will be the best one to advise you about your daughter's situation because she will know her lab results, medications, and any specific information related to pancreas/kidney recovery and healing. There might be need of a medication adjustment or adding a vitamin to her diet. But only add vitamin if doctor says to do it!

Mariam, Does she like ice cream? That is what I was encouraged to eat!

Liver or Pancreas or Kidney, Lungs, Heart Transplant - We all share some similar concerns and are able to support each other. Here is a discussion that you will be interested in:
- Loss of taste after liver transplant
https://connect.mayoclinic.org/discussion/loss-of-taste-after-liver-transplant/