← Return to Does anyone have Birt-Hogg-Dubé syndrome (BHD), genetic lung disease?

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@mike500

Thank you very much for your immediate response. I am 49 years old an i live in Athens ,Greece. I am looking for a doctor who is experienced in BHD .I only have symptoms in my lungs. I have multiple cysts and i have had multipleepisodes of pneumothorax in both lungs.
I was operated in my right lung 20 years ago and had a pleurodesis ,but now i have an issue with my left lung and there is a debate whether i should have a pleurodesis or not.
Furthermore, and that is the critical question, i would like to know what is the prognosis of the disease ,and what is the possibility of lung transplant.

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Replies to "Thank you very much for your immediate response. I am 49 years old an i live..."

I'm tagging @dc1950 to make sure she sees your questions about what the future might look like and lung transplant options.