Bakers Cysts, Lacrimal Caruncle Spots

Posted by glinda47 @glinda47, May 13 10:51am

I don't recall if I've discussed this out here before. Forgive me if I have.

I have still not been diagnosed with PMR but I seem to be a poster child for it. Looking for another rheum now. Though, at this point, I'll take a well-reputed witch doctor if they have time and knowledge to give me. Out of pocket.

Back when I had my first symptoms, it was about a month+ after my 3rd or so covid booster. Is there a connection? Who knows?
Just thought I'd mention it.

The first symptoms seemed to be sore thighs (incl quads, hams, groin, adductors, abductors) which I fully attributed to over exercising. Which I was and focusing on the thigh area for strengthening and saving my knees.

I saw a sports medicine "doctor" who immediately sent me for a hip x-ray and didn't see much arth. Then straight to PT where I felt like I'd been through a beating each time. So I quit.

Before the PT, my mildly injured rotator cuff had seemed worse and the left one was becoming a bit bothersome. After PT, they both became very PMR-like.

As time went by, pain and stiffness worse. It seemed when I rose from a chair, I was actually stiff and shaky! ME!!! I could NOT believe this. Then I realized the backs of my knees were killing me. Found out I had Baker's cysts for which treatment is short-term at best. Great. In a few weeks, my kneecaps began to hurt too. Somedays are ok, some are beyond painful. Life is not fun when the body hurts from top to bottom.

I also noticed in my lacrimal caruncles (inner corners of my eyes) a bunch of yellow-ish-white spots which had developed mixed with the normal pink background. I was shocked.
Saw an ophthalmologist and asked my rheum to also look. Neither were fazed. But I am...I'm convinced there's a connection. I have an appt with a neuro-ophthal in a few months. But hopefully I can get in sooner...I don't hold out much hope tho.

I don't understand this Baker's Cyst thing. No treatment? You just live with this, hoping it will drain?

I'm really just discouraged and frustrated along with the pain. I want a diagnosis. I can't take steroids, so I don't want someone who needs to get with their next patient to tell me I have PMR when they don't really know nor do I want them to deny it because they don't want to help me find other medications or methods that could help with this.

I appreciate any feedback to all this. And thank you for reading if you've come this far. I've read, researched, talked to people on forums, etc, till my head is splitting.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@glinda47

Age is a big factor for the diagnosis of PMR. If 47 is your age then many doctors won't diagnose PMR. What you describe suggests an inflammation problem but hard to say what is causing it. I was 52 when I was diagnosed with PMR. I was barely old enough and male so that made PMR "unlikely."

I was closer to 30 when I was diagnosed with inflammatory arthritis. Evidence of arthritic damage takes a long time to present itself when you have inflammatory arthritis caused by an autoimmune disorder.

My type of inflammatory arthritis was triggered by an infection and called "reactive arthritis" I suspect "post-Covid PMR" might actually be a type of reactive arthritis which is also associated with eye inflammation. This is pure speculation on my part! However, I am prone to flares after receiving any vaccine so I avoid vaccines in general. My Moderna Covid vaccine and boosters didn't cause any problems for me. My rheumatologist says "it can happen" in regards to my reaction to vaccines.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10017067/#:~:text=Immune%2Dmediated%20conditions%20associated%20to,previously%20infected%20with%20COVID%2D19.
I'm just guessing to be honest.

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Has anyone suggested aspirating the 'bakers cyst' to see what the fluid contains ? Sounds like instead of all the guessing, there should be some actual fact finding !!!

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My rheum said I could if I wanted to but it would probably recur. She didn't seem to be concerned that there was anything inside that could be toxic or cancerous.

Actually I see there is something called a synovial sarcoma that can develop in soft tissue, so who knows? I don't think what I have fits the description but they have been misdiagnosed as Baker's cysts and did spread in cases I read about.

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My PMR came on after a major endurance bike ride. Same thing of Bakers Cyst…that went away slowly. My PMR was diagnosed by a very good neurologist…who was able to get me in quickly to a rheumatologist. You’ve certainly got something going on.

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It's interesting that so many with PMR are athletic. Same here. For decades, dedicated to keeping the body strong and fit.
Did you do anything for your Baker's Cyst? How long did it actually take to resolve?
Are you on pred for PMR?

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