1. < Neuroendocrine Tumors (NETs)

Describe your recovery from lung NET surgery

Posted by emilyfaith @emilyfaith, May 2 5:12am

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No symptoms, and otherwise in good health. Tumor board recommends surgery removal of entire lower left lobe. Please describe your surgery experience.

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Zebra | @californiazebra | May 14 10:21am
In reply to @shosh3700 "Lately, I have started coughing out of the blue for no reason. Has anyone else with..." + (show)
@shosh3700

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

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I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for the past 3 years have brought it down to normal and it has been life changing for the better. Still have some abnormal shortness of breath upon exertion but that has improved too.

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shosh3700 | @shosh3700 | May 15 11:28am
In reply to @californiazebra "I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for..." + (show)
@californiazebra

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for the past 3 years have brought it down to normal and it has been life changing for the better. Still have some abnormal shortness of breath upon exertion but that has improved too.

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what a relief for you!! I'm so glad.

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