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Describe your recovery from lung NET surgery
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (65)Comment receiving replies
I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for the past 3 years have brought it down to normal and it has been life changing for the better. Still have some abnormal shortness of breath upon exertion but that has improved too.
Replies to "I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for..."
@californiazebra
How and where were you diagnosed with DIPNECH? Did you end up having surgery? I have also been coughing for 30 years and have multiple small nodules that have been monitored. I'm non smoker with COPD. They are saying possible DIPNECH? Now I have a slow growing 1.2 mm carcinoid LLL and 0.6 mm in the RML. I had a biopsy which did not test for DIPNECH. The surgeon reccommends segmentectomy, possible lobectomy of the larger carcinoid. He will refer me to a DIPNECH specialist afterwards. I'm trying to get few second opinions on this before I decide on surgery.
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what a relief for you!! I'm so glad.