← Return to Cricopharyngeal Dysfunction (Difficulty Swallowing)

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@suzannekay753

Hello. I to have severe dysphasia due to radiation in 2013. I’m trying my best to avoid a feeding tube too. I am unable to even use the thickening product. I just drink ensure ( coughing all the time) puréed soups, peaches I use yogurt to swallow my crushed pills. I’m praying I’ll get better but I feel I’m fighting a loosing battle. I don’t eat in front of people because I have to spit a lot and I cough. Lots of thick phlegm. I had skull base reconstructive flap surgery january 3, 2023 and my swallowing is worse. Surgery was 12 hours long. They removed all the infected tissue and bone from skull base and put flaps(,pieces of my skin and veins) and covered it with new tissue and veins. Ugh. I’ve recovered from that but no swallowing and everything sticks to the flap on the roof of my mouth. Make sense? Anyway I just pray 🙏

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Replies to "Hello. I to have severe dysphasia due to radiation in 2013. I’m trying my best to..."

Oh my I think my brain has been affected. I already replied Sorry 😢

oops .. believe I missed this post?
Yes .. hear you completely on eating with other people! When on my own, I can cough out whatever that gets stuck in throat - but when with other people or in public environment, it would be impossible. Thus it restricts me in socializing and meeting up with family and friends.
On top of this - there is the hearing issue and also the dysarthria/speech issues.
I, now, go on the basis that I will do my best to keep my dysphagia & dysarthria from deteriorating (advised that it will get worse down the road because of the radiation) - and take one day at a time!
Cheers & all the best !!