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Switching Transplant centers for post transplant care

Transplants | Last Active: May 15 3:47pm | Replies (23)

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@edwardlwallace

I had a Liver transplant - actually two - A few days after first transplant something went wrong I think a clot in main portal or something caused some skewed numbers so. I went through tests and eventually opened back up to explore and fix. I came too hearing my wife be told I was going to be relisted and several days later and another transplant and a few days later I had another surgery to check everything out and close when swelling started to recede. My first transplant was Aug 5 and I was home by Aug 30th 🙏🏽❤️

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Replies to "I had a Liver transplant - actually two - A few days after first transplant something..."

Hi @edwardwallace. Wow! 2 liver transplants in such a short period of time is a remarkable accomplishment - for you, your wife, and the transplant team! what a miracle - plus knowing that you are doing well and enjoying biking and hiking, too!
I'm running late on making replies here on Connect because I have just returned home from my 15th annual post transplant check-up at Mayo Rochester. I received a simultaneous liver and kidney transplant in 2009. As Colleen mentioned, I get my follow-up care at a distance from my transplant center. In fact it is 799 miles (one way) from my home in Kentucky! It sounds like we are/were 'almost' neighbors, however I live near Lexington.

I became a patient at Mayo after a referral by the UK liver transplant dept when complications developed due to my Primary Sclerosing Cholangitis (PSC). And, I even spent 5 days at the UofL hospital Transplant floor when I developed sepsis 14 years ago and was treated there with the UofL doctors communicating with my Mayo transplant team until I was stabilized and able to travel to Rochester. It was intetesting that the UofL team would not attempt any kind of invasive procedure on me, unless it was a life-death necessity - because my transplanted liver and kidney belonged to Mayo. The good news is that I did stabilize and went to Rochester where a surgical hernia procedure was performed. For me and my husband, distance follow-up is working well.

Edward, I would like to suggest that you contact the Liver Transplant Center. You will be able to speak to someone who can direct you and your current trancplant center about how to proceed.
Here is contact information:
Arizona
-Call
800-344-6296 (toll-free)
8 a.m. to 5 p.m. Mountain Standard Time, Monday through Friday
-Email
ARZTransplantCtr@mayo.edu

I'll be headed to the Great Smokies in a couple months for some hiking with husband. Have you been there?