Anyone have cancer with unknown primary?

I was just diagnosed with metastasis in liver, but no primary tumor. They scanned me from head to toe- didn’t find a cancer origins. I have noticed that you posted your question about 5 yrs ago- how r u doing or someone you placed your post for? Just curious

Hi Nikkie
I have CUP too diagnosed beginning of February. It had already metastasised to lymph nodes. If it was just pelvic area (2 tumours here) things would be better but in peritoneum -lining (2 here also) We probably killed the primary with our immune system but too late. I’m attacking it from all angles because I’ve got a little girl aged 12 which is the hardest thing but as a Christian, I trust my Saviour and know without any shadow of doubt that ‘absent from the body, present with the Lord’. I’m so sorry to hear of your diagnosis. Do vit c IV, eat foods that will starve the cancer plus try the off label drugs or supplements that Jane McClelland talks about in her book.

Thank you for replying! I was diagnosed in February as well. They offered me a double chemo, because nothing else would help( according to an oncologist), but chemo will add just several months to live. Struggle so much for nothing basically? Does it worth it? Maybe I should go with the flow, I feel good, no side effects ( yet?). I have never smoked, I don’t drink, eat healthy, and problem was accidentally found on my annual ultrasound check up. I have a little time to make a decision. Don’t know what’s to do.

Only you can decide. I’m having double dose chemo. Well, will have my 3rd round only if blood count comes up - was too low last week. I’m in UK. Praying you’ll know God’s peace.

I am praying for you and your daughter. I was thinking of you since I woke up. Keep in touch, I am in the USA, but it seems we have the same choices- double chemo. How are you feeling yourself?

Well, thank you. I am doing the double dose chemo paclitaxol and carboplatin. I love listening to a pastor that was in Redeemer in Manhattan (Tim Keller who is with the Lord now). I’d recommend listening to two messages - one is Death can only make me better- remembering Tim Keller and the other is Talking to yourself, not listening to yourself. They are both short on YouTube. I will let you know how things go and will remember you in prayer.

I was diagnosed with CUP in October 2023. The cancer is in my abdomen and has impacted my bowels, which has caused a bowel obstruction. I currently get nutrition by IV and have a gastro tube that empties my stomach of bile and other liquids that build up because there isn’t a way through.

I’m about to get my eighth chemotherapy treatment. The goal is that when I get tested/scanned in July, there will be a significant reduction in cancer. I may consider HIPEC surgery if that’s an option then, but the best outcome is that chemotherapy cleans it out. So far, my abdomen is the only place where cancer is located.

There’s also PIPAC but not sure if that would be relevant- it’s the latest treatment after HIPAC. May be worth asking about? Be thinking of you Toby.

Thanks for the info. Much appreciated.

Seems relevant to my situation. Do you know if the Mayo Clinic offers this treatment? I am being treated by a local oncology team here, in New Orleans. I am also being tested/treated at MD Anderson. I don’t see this treatment on offer by these institutions. ChatGPT lists a few places; Germany, Japan, etc.
see https://chat.openai.com/share/299f1bc3-12cf-427f-a27e-b00dc714ef86