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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 minutes ago | Replies (807)
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@walkinggirl

While at the Mayo Clinic for a septal myectomy 7/22, I was referred to the genetic counselors. (Out of 123 genes studied, none were mutated - new ones are found periodically - test again in about 5 years.) To answer your question, contact your insurance company and ask. My #1 NYS top rated Medicare advantage plan covered it in full. If you have descendants, it would be worth doing even if you need to pay out of pocket. My son and grandson had echocardiograms and will need them periodically unless the evasive gene can be found.

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Replies to "While at the Mayo Clinic for a septal myectomy 7/22, I was referred to the genetic..."
stillstudying | @stillstudying | May 14 11:45pm

Thanks for your response - The first thing I did was check with my doctor's team, then the lab they use, then (Original) Medicare. Different answers, none that I felt was definitive. Did some light research on my own and decided that learning medicare regulations in enough detail was more effort than the cost savings if I get denied. 4 siblings, 6 children, 4 grandchildren. Already ordered the test - just trying to clarify billing. Surprise effect from the Camzyos - I have had difficulty breathing on my back as far back as I can remember and much worse as my HOCM worsened. Oxygen helped but no doctor believed me because my blood oxygen wasn't low enough. When I was on my back during part of my ecoh yesterday I realized that I was breathing without effort. Pleasant surprise.

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