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How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: May 18 12:08pm | Replies (30)
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@deb913

I have been on jakifi 25mg 2x per day for past 5 months with no side effects except constipation. I have CEL, so not the same diagnosis, but same medication. Good luck. I hope the jakifi works for your husband.

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Replies to "I have been on jakifi 25mg 2x per day for past 5 months with no side..."
onthejoedock | @onthejoedock | May 14 9:35am

Thanks for comment. Joe has
polycythemia vera (PV Platelets go high sometimes the red blood cells go high. They just doesn't have any energy but he's only on 5 mg twice a day, but it is been a month and a half and I think they're gonna have to raise it but it's good to know what you can take and it's OK. I just hope they can get this under control and he has a little energy. He's very, very active guy in the 70s like he was 50 until his head on now he's 77 and he could Mow Grass walk his dog go back to bed so it's hard to watch and it's hard for him. Just any advice you'd have an energy would be wonderful and I hope everything goes well for you.

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