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Parkinson’s Disease Misdiagnosis

Parkinson's Disease | Last Active: Oct 24 9:05pm | Replies (17)

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@paulbkk1979

Hi Teresa thank you for your reply and yes I have taken medication for the disease, carbidopa levodopa and it did not alleviate my symptoms of occasional dizziness, blurred vision, or frequent urination. My neurologist did say that it might be an illness that is similar to Parkinson’s disease, but he has not done any tests to determine whether it is related to the disease. I have had brain MRI’s done twice and I have no abnormalities showing on the scans of the brain. I am seeing my neurologist again in June, do you have any recommendations for any questions that I should ask him?
I read that constipation is one of the most ubiquitous symptoms of Parkinson’s disease is that accurate or not? I have absolutely no problem with constipation thankfully. I hope you are doing well Teresa and having a wonderful Mother’s Day weekend.
Paul

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Replies to "Hi Teresa thank you for your reply and yes I have taken medication for the disease,..."

@paulbkk1979 Hello Paul,

Thanks for your post and the additional information you provided about the diagnostic tests and medications that have been tried. While constipation is a common symptom associated with PD it is probably best not to look at just one symptom to either diagnose or rule out PD.

As you report blurred vision and dizziness, I'm wondering if you have been examined by neurological ophthalmologist. If not, a referral might be a good option.

Have you ever had balance testing? If not, you might inquire about this as well. There are different types of neurological disorders that are related to vision and balance problems. If there is an issue with vision and balance, vestibular therapy could be very helpful to you.

I also wondering whether your current doctor is a movement disorder specialist. These are neurologists with special training in movement disorders like PD. If not, you might consider asking for a referral to one of these doctors.

As a second opinion might be quite helpful at this time, I'm wondering if you live near a multi-disciplinary medical center? I'm thinking about a health care facility like Mayo Clinic (appointment information for any of Mayo's three campuses can be found here, http://mayocl.in/1mtmR63), or a university medical school or a Parkinson's Center of Excellence. These might be places where you can get a thorough work-up by different specialists to treat this complex of symptoms.

I hope that some of these ideas might help you formulate a list of questions for your doctor at your next appointment. I look forward to hearing from you again. Will you post any other questions or concerns?

Several symptoms are related to Parkinson's.Yes it varies for each person. My experience with my husband was first.Loss of smell, constipation, vivid nightmares and not getting REM sleep, sleep apnea, falling and difficulty with his posture. He was not able to write his name. He did not have the classic symptom of jerking of his left arm and hand . My brother has Parkinson's as well as my father. My father is deceased and my brother is in hospice. He is 67 yo. This terrible disease has been heartbreaking and sometimes bitter sweet. Movement Disorder's are hard to manage. Continue to take care of yourself as best you can .