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I have MGUS

Blood Cancers & Disorders | Last Active: Apr 14, 2023 | Replies (56)

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@dazlin

I'm getting your emails, but I don't even see my original post from yesterday..it said..new here, MGUS. Where did it go? Am I looking in the wrong place, doing something wrong. I'm on blood disorders forum.

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Replies to "I'm getting your emails, but I don't even see my original post from yesterday..it said..new here,..."

Ok, I see I'm merged here in another discussion. Thanks for the replies jamienolson, and oldkarl. I'm contemplating calling scheduling for a new oncologist, but I'll also need bloodwork, which is ordered by my onc nurse...so, not sure how that will work..??

@dazlin Most importantly, Call the clinic and find out. If you don't call, you will never know. Learning comes in strange ways. After 30 years fighting diabetes, I learned yesterday that my A1C is too low, and the doc is concerned about hypo.

Thanks oldkarl, I will call the clinic

Oldkarl, hopefully you'll get that A1C under control...maybe meds throwing things off?? My husband is type 2 diabetes, but dr holding off meds for now. I cook special for him, cook, cook, cook...and the poor guy ALWAYS hungry...drives me crazy LOL. Get better soon!!

@dazlin Thanks, dazzle. I think what is happening is that my systemic amyloidosis has invaded either my pancreas or the brain<->pancreas sensory-motor nerve, just as it has my heart, lungs, etc.etc. Thankfully, I cook most of my own meals, so wifey cannot be blamed. She would clobber me.