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I have MGUS

Blood Cancers & Disorders | Last Active: Apr 14, 2023 | Replies (56)

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@dazlin

I was diagnosed about a year ago with MGUS, and some other health issues. I basically take labs, and bone scans, ect every 6 mos. Overall I'm very pleased with my care providers, except for one dr in oncology. I'm experiencing new symptoms and would like to see a different dr in 6 mos. I'm not sure how to request a change for an oncologist in this field since my appts are auto scheduled. Would anyone be able to direct me here...greatly appreciated!

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Replies to "I was diagnosed about a year ago with MGUS, and some other health issues. I basically..."

Hello @dazlin. Welcome to Mayo Clinic Connect! You will notice that I merged your question into an discussion already taking place on MGUS. There seems to be really good information within this thread.

I would like to introduce you to other members diagnosed with MGUS. Please meet @bonniecanby, @billh, @lisa54 and @briansr.

To answer your question- It's your choice to change providers if you're unhappy with the one you have. It's a matter of calling the appointment desk and asking to see a different oncologist. If you have further questions that I can answer for you about this- please feel free to connect with me. 🙂 I'm happy to help!

@dazlin Hi! MGUS is a really tough issue sometimes. It has taken me a long time to get a diagnosis, and I still wonder about it sometimes. But for your issue, to be quick about it, if one of your doctors is one you really trust and get on with, just lay it out to them. Or, as I have also done, there should be a patient advocate close by, and if you can make that person listen, they will help you. And don't let them get off with "Oh, things will be all right." That is the cheapest excuse there is. Or, print out your note, and mine, and Jamie's, and take them to the advocate. Sometimes print helps. But do tell someone at the clinic, and there will be someone who helps you. oldkarl https://bit.Ly/1w7j4j8

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I gave some details about my reasons for wanting to switch drs...unable to post??