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I have ovarian cancer

Gynecologic Cancers | Last Active: Sep 28 8:37am | Replies (162)

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@m1b1r9

Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!

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Replies to "Hello to all, I had asked for an appointment at Mayo clinic in AZ, but they..."

I am very surprised that the Mayo Clinic did not set up an appointment for you. Perhaps you should contact them again. I was diagnosed with ovarian clear cell two and a half years ago which is obviously different than the uterine form. Were you exposed to DES? For those of us with OCCC, most of us had endometriosis. As a physician, I would think they would recognize your desire to inquire about alternative treatments that might be available.

@m1b1r9, I agree with Odette that you may wish to contact Mayo Clinic again to get an explanation as to why you were declined an appointment. I believe you mentioned that you were receiving treatment at MD Anderson. It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel. Or perhaps it was a capacity issue at the Arizona location. If travel is not an issue, you may inquire about an appointment the Florida or Minnesota locations.

Here is some further information about HIPEC from Mayo Clinic proceedings written for medical professionals that may interest you:
- Cytoreductive surgery and HIPEC offers effective treatment for selected patients with peritoneal carcinomatosis https://www.mayoclinic.org/medical-professionals/cancer/news/cytoreductive-surgery-and-hipec-offers-effective-treatment-for-selected-patients-with-peritoneal-carcinomatosis/mac-20429726

What treatment are you currently getting?

@m1b1r9, how are you doing?