← Return to Timing of Reclast Infusion after your last Evenity Injection.

Discussion
Comment receiving replies
@windyshores

@jillgirl I have scoliosis too. But I don't think my bones will ever be healthy enough for a surgery like that. Your kyphosis must be a lot worse than mine. I have fractures in T4, T6, T11, T12, L1, L2 and L5. But I am able to walk quite a long distance. I am visibly bent and have pain, but enjoy a long walk with my daughter in the city and walk about 45 minutes every day. Any chance you would get off the walker without surgery? It sounds very painful. Tai chi has helped me.

Jump to this post


Replies to "@jillgirl I have scoliosis too. But I don't think my bones will ever be healthy enough..."

I wish I could walk, even with the pain I would be having a seemingly normal life. After the fracture I could not walk, with my brace on, from my front door to the end of the driveway without being completely bent over and gasping for air. I am told something must be done due to the angle of the fracture and nerves affected. I have seen three surgeons concerning this fracture and all agree it will get worse.

Yes, I have doubts if my bone density will improve enough to withstand the surgery and continue to support the rods. My hopes have improved since starting Evenity, even with all the side effect, I feel my back has gotten stronger, yet the pain remains. My neurologist is head of the medical department of a well known university so trust in my medical team is not another worry I must face. My first visit with him he clearly told me no surgery (with rod support) without improved bone density. My hyperkyphosis will eventually lead to what is known as chin on chest syndrome. A lady with this condition works at a local store and we discuss our spinal problems - and surprisingly she states the pain doesn't bother her much or interfere with her daily life. Her main concerns are her appearance and being stared at.

My career has allowed me to live and work in Japan, Korea, and twice in Germany and I have plans in retirement to visit the staffs and people I got to know. And to see a few countries I missed in my travels, especially Ireland and Scotland. And I would still do this if I could just walk without this off the charts pain and bent so badly I have to walk concentrating on not falling. All I see is the ground when walking. The alternative is sitting at home waiting for my Walmart/Amazon/Target deliveries. I simply cannot face that future without knowing if the surgery could have helped me. One must have hope.
If the neurologist gives the OK, I will have the surgery. And I will continue to deal with the side effects of all these bone meds.