← Return to Living life after treatment and surgery for Esophageal Cancer.

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@stever1

Hi all. I'm new to the group. I have stage 4 Adenocarcinoma of stomach and esophagus. I went through 3 months of Chemo and an Esophageal-gastrectomy in January 2024. I'm losing weight and muscle mass. I get very generic advice from my care team. Eat frequent small meals. High calorie, high fat (good fat), don't mix food and drink, etc. I really need advice from someone who has lived through this process. someone who gets it. I like eating, but hate the feeling after I am done. Even small meals. I get hot, then weak, then diarrhea for 1/2 day to 2 days. I have to rest for 1-2 hours after I eat. It's like food sucks the energy right out of me. I call these "episodes". They don't happen every time, but today, it was 3 times after each attempted meal. I had a 20 gram protein bar for breakfast. episode. Felt like eating again at noon. I had some chicken and some mac and cheese. (small portion). episode. for dinner at 5, I had 1/2 of a side salad because my wife wanted to go out to eat. On the way home, episode. So frustrating. I'm down 30 pounds and have lost a lot of muscle mass. I'm 61 years old and feel like I'm 80 at times. I would love to know if my episodes sound familiar to anyone and how you avoid them. Thanks in advance. Steve R.

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Replies to "Hi all. I'm new to the group. I have stage 4 Adenocarcinoma of stomach and esophagus...."

Hi and welcome, @stever1. Your trials and tribulations with finding the right foods, when to eat and how much sound exhausting and frustrating. Eating out
can be higher stakes, too. Since this is all relatively new for sure, I'm confident that fellow members like @sjw6358 @dave640 @katoosh @naomicanada @lori57216 @pellaw @survivorsuz @puprluvr @dsh33782 @ajfromchicago @socalkelly and others will have tips to offer.

Steve, have you consulted with an oncology dietitian? Have you noticed specific foods that trigger an "episode"?

Buongiorno Steve,

Fully understand, where you are at in your journey with this cancer. Hopefully, you are still hanging in there. My diagnosis was Sep 2022. Received radiation and chemo, followed by gastricesophageal resection and then immunotherapy. Past immunotherapy and basically at the same level physically as prediagnosis. The only difference has been dealing with the nutritional consequences of chemo mainly and with surgery secondarily. Now at age 82. Also lost weight, initially, from 160 down to 136. Now back up to roughly at 150. So oh yeah, that muscle mass decreases. That is the negative side. The bright side is the fat goes, too! Muscle came back. The fat stores didn’t. But as you are learning, too, due to the gastric size reduction protein intake needs to be increased. I did doctoral studies in nutritional biochemistry in the 1970s, but felt like a neophyte regarding nutrition after chemo and surgery. Have been working my way through it. Would be glad to give advice from my experience. Nutritionists and docs gave generic advice, that was virtually useless.