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Switching Transplant centers for post transplant care

Transplants | Last Active: May 15 3:47pm | Replies (23)

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@cehunt57

@schwartz welcome to Mayo Clinic Connect. I had a pancreas alone transplant at U of M 18 years ago. At that time I was told that my kidney disease was only mild - moderate and that I did not need kidney transplant at that time. I was satisfied with the pre-transplant evaluation and thrilled with the pancreas transplant. It was my own personal life changing miracle. The transplant occurred just 2 1/2 weeks after listing! BUT over time I felt the follow up care was inadequate. 11 years later the pancreas function was loosing ground and my chronic kidney disease (CKD) was worsening. It was time to start looking into kidney transplant. I went through pre-transplant evaluation at U of M and at Mayo in Rochester. I was approved and accepted at both. I chose to switch to Mayo. The pre-transplant evaluation was thorough and far superior to that of the U of M. I asked questions about the follow up care and was convinced that it would be better at Mayo than the U of M. So it is possible to switch transplant centers (for future transplant needs) BUT Mayo is not technically following my pancreas post transplant care (as it is not their transplant). Since switching I have received excellent care from Mayo and look forward to kidney transplant there when the the time comes. I am in the Twin Cities, MN metro area and have local endocrinology and nephrology providers that collaborate well with Mayo providers for my diabetes, CKD and post transplant care. I suggest that you contact the Mayo Transplant Center to inquire about an appointment. What can it hurt? Could you please comment post again to let me know how things are going?

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Replies to "@schwartz welcome to Mayo Clinic Connect. I had a pancreas alone transplant at U of M..."

Thank you so much for the reply! I will give them a call! My favorite Nephrologist from the U went to the Mayo and is the most kind and thorough doctor I have ever had. I have had a complicated post transplant experience and he has really helped me navigated that. Since he left the U my follow up care has really suffered. I guess the worst they can say is no! I will update how that goes!