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Essential Thrombocythemia and stroke: Do you have TIAs?
Blood Cancers & Disorders | Last Active: May 9 8:09pm | Replies (15)Comment receiving replies
My doctor has taken time to figure out the problem with my raised platelets. I have been seeing my GP since March this year. Several test done. Today he rang me in and told me CARL Exon 9 Mutation and JAk2 V617F Mutation have been detected in my blood sample. He said i have ET but he needs me to do a bone marrow biopsy before he can put me on medication. My platelets have been rising since 2021 and today reading was 848. He asked me to return in 3 weeks time for the bone marrow procedure. In the meantime she put me on 100mg aspirin.
Replies to "My doctor has taken time to figure out the problem with my raised platelets. I have..."
When I started on Hydroxyurea my platelets were at 891…. but the drug brought them down right away by 100 points in one week to 790. I had blood tests once a week for 3 months and now have them once a month. Platelets continued the downward trend but much more slowly. I am now back up to 455 after having been as high again as 600, and as low as 375. My monthly draw is scheduled for next week, so I am anxious to see if I am back within normal range. I guess what I am saying though is that platelets can fluctuate even when on medication. But I am grateful for the meds because I don’t seem to have many side effects. ( Maybe just more tired than I used to be….but I am approaching 70 years old too! 😉)
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The first aspirin you took immediately started protecting your cardiovascular system.
This must be a stressful time for you. Please know effective treatment options exist. People have been living (well!) with ET for decades.
All good wishes!