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Platelets are too high: What can be done to find root cause?

Blood Cancers & Disorders | Last Active: Jul 10 1:35pm | Replies (50)
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@bosmac

You are absolutely correct on doctors taking time before they can figure out the problem with raised platelets. I have been seeing my GP since March this year. Several test done. Today he rang me in and told me CARL Exon 9 Mutation and JAk2 V617F Mutation have been detected in my blood sample. He said i have ET but she needs me to do a bone marrow biopsy before he can put me on medication. My platelets have been rising since 2021 and today reading was 848. She asked me to return in 3 weeks time for the bone marrow procedure. In the meantime she put me on 100mg aspirin.

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Replies to "You are absolutely correct on doctors taking time before they can figure out the problem with..."
nohrt4me | @nohrt4me | May 9 9:42am

Yes, took from March to November to get my firm diagnosis. Later, when the CALR test was available, I had that to confirm my driver mutation.

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pattycake11 | @pattycake11 | May 11 9:39am

I am on aspirin as well. I read somewhere that if bone marrow biopsy didn’t show anything and all other blood work and scans ultra sounds didn’t show anything it would be a fluke if they found the cause

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bosmac | @bosmac | Jul 8 5:37am

After being started on 500mg daily of Hydroxyurea for the last one month, my platelets have dropped from 848 to 466. However, this has also reduced my White blood cells (WCC) from 7 in March to 3.4 in July plus a further reduction in my kidney function from 47 to 41.
Anyone here having experienced this kind of reductions when they first started using hydroxyurea?

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