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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (779)Comment receiving replies
That is quite a story you shared @camtak! I'm so glad you found Mayo Connect too, welcome aboard.
How wonderful that you are a super athlete. But no wonder you were so shocked. I was too when I found out I had HOCM at 62. Your story is so similar to mine. I was told no more yoga or weight lifting too, because some of the strong poses, and the strain of lifting something heavy could send you into V-tach. And V-tach kills you! And isn't the eating a large meal deal the weirdest thing? Who would think?!
What a blessing to be have been sent to the Mayo in Arizona. You mention you were sent to Mayo, I assume you mean Rochester? That is where the finest in the world are for HCM and HOCM. Will you need to go back to see them for follow up?
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Hello karukgirl!!
Yes, they put referrals in to both MN and AZ, and AZ is the one who responded.
I saw Dr Cannon. He really just went over the symptom options, none of which I was ok with. He did increase my Metoprolol dose to 25mg twice a day, and that made a huge difference, even after eating.
I understand how the eating plays a role with the breathlessness, all the blood going to digestion and none left for an hour or two after eating certain things or too much.
I can really mitigate any symptoms by staying hydrated, planning ahead my eating schedule with what I am doing.
I almost never sit down!! I am busy and active every day. Tons of energy and I love the outdoors.