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Welcome to Connect, @paulbkk1979. Hemochromatosis is a disorder where your body absorbs too much iron from the foods you eat. Excess iron is stored in your organs, especially your liver, heart and pancreas and can lead to serious health issues. As you’ve found out, this condition is often hereditary but from my understanding most people don't experience symptoms until around middle age and up. So that explains why you were diagnosed around 64.
Here are a couple of informational links for you to check out if you’re interested:
Mayo Clinic~
https://www.mayoclinic.org/diseases-conditions/hemochromatosis/symptoms-causes/syc-20351443
Another article from, Healthline.com https://www.healthline.com/health/hemochromatosis#diagnosis
Were you having symptoms that led to the discovery? Are you having any treatments such as chelation or phlebotomies to help lessen the amount of iron in your body?
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Hi Lori I don’t understand why my ferritin levels have dropped so dramatically without any kind of interventions, like phlebotomy or drugs. I was told by my doctor that my initial test showed a level of ferritin around 1,000 mu/L, which was in 2014 or 2015 and I did have phlebotomy treatment at the hospital for about a year. Since then I have done nothing to treat my hemochromatosis Lori. My ferritin level last month was in the 90’s why would the level drop without any treatments or medication? I don’t understand how it could happen if the cause was genetic Lori do you know?