My dad's cancer returned and now it’s stage 4 metastatic cancer
Hello,
6 years ago my dad was diagnosed with prostate cancer and had prostate surgery. He seemed to have an aggressive form and had to do radiation and hormone therapy after surgery for some time.
Yesterday we were informed that the cancer has returned in his spine, meaning it’s spread to the bone. The doctors located a tiny spec of the cancer and have told my dad to undergo radiation for a few days and then start hormone therapy.
In the past my dad hated the side effects from the hormone therapy and from my understanding now that the cancer has metastasized he will be on hormone therapy for the rest of his life.
Has anyone here experienced a similar situation and can share your experience. Is the quality of life still okay with hormone therapy?
I’m so sad for him as he finally decided to retire at the end of the month, but now has this situation to deal with. I’d appreciate any insights on being on hormone therapy for life and if there are any other major issues that can happen due to the medications.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
I’m sorry you are also battling this disease but very happy to hear that you are living a great life. Your story and all the other stories are so very helpful to hear about.
Thank you for sharing and sending you all the positive thoughts that your PSA stays negligible! 🙏🏽
Thank you for the information. Your stories are so very helpful. Sending you nothing but positive thoughts that your blood results are good!
My dad starts radiation tomorrow for three days (MWF). His doctor also asked him to start taking Bicalutamide two days ago. He has been instructed to take this for one week before Lupron and one week after. Have you heard of this drug and process before?
Thank you Kevin for sharing your story. I’m happy to hear you still continue to live your life and do all the things you love. I do believe that sometimes it’s mind over matter and you have to that positive mindset.
Also, thank you for sharing your chart. I noticed a note on there mentioning afib. Do you have that as a result of the medications?
I first noticed it after a dinner date with my wife where we shared a bottle of wine.
My cardiologist said I needed to stop drinking...or go on medication...
He had no cause and effect correlation but I said maybe it's the ADT...I had no scientific cause and effect either but a strong intuitive correlation.
I said I would watch my drinking, usually 7-10 a week.
He put me on medication which didn't work, kept getting breakthrough episodes.
He tried cardioversion once when my heart wouldn't come out of AFib by itself. My wife was not enamored with the idea of stopping my heart....
Finally when he said the only medication left required three days in the hospital for monitoring because if the side effects, we said do the ablation.
Problem solved!
So, yes, I do think ADT was a causation. Can I prove it, no!
It is why I say you should have a cardiologist on your team!
I've heard of it but haven't taken it or looked into it. It's mentioned on this forum, perhaps you can find more info by searching here.
These drugs are standard of Care I was on Zolodex and still am for 7 years just like Lupron
how old is your dad? Do you know what his Gleason score was? Whats his PSA at now? One spot was determined by a PSA Pet scan ? Ask Dr about 5 months on ADT then 5-6 months off . Efficacy research is promising . Hope to hear back . James - Vanc Island .
How long does your doctor say you can be on zolodex . Can you go 6 months on 6 months off ?
Since your dad’s prostate cancer metastasis is only to bone, have they recommended Xofigo (Radium-223)?
Here is information: https://www.bayer.com/en/news-stories/radium-223-prostate-cancer
Here is a technical description: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5593411/