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Platelets are too high: What can be done to find root cause?

Blood Cancers & Disorders | Last Active: Jul 10 1:35pm | Replies (50)
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@nyjean

Patty, when my platelet count rose slowly & steadily over several years I was very worried about the possible cause (inflammation? infection? ovarian cancer?). When it reached 400-500 about 6 months ago, genetic testing showed the JAK2 mutation. I believe that's present in many (maybe most?) ET cases & that (I think) was likely the cause. Started taking one 500 HU a day & the numbers are now in the normal range -- hoping they stay there.

Jean

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Replies to "Patty, when my platelet count rose slowly & steadily over several years I was very worried..."
pattycake11 | @pattycake11 | May 8 5:06am

I have been on this medication for over 3 years. Still in mid 600. I was taking one 2 a week and now up to 3. We will see if this has helped when I have blood work later this month.

Thanks for info

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dkmitchell | @dkmitchell | May 9 11:38am

I also have the JAK2 mutation as does my brother. My brother could not tolerate the side effects of hydroxyurea but I can. My brother is taking a different medication for the JAK2 mutation but not sure what it happens to be. My last blood draw revealed a 408 blood platelet count and my first platelet count last a year ago was 1 million.

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