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DiscussionEssential Thrombocythemia and stroke: Do you have TIAs?
Blood Cancers & Disorders | Last Active: May 9 8:09pm | Replies (15)Comment receiving replies
Replies to "I am a 69 year old female. I had a small stroke last April (a year..."
Thank you for sharing that. Really good to hear there is life after stroke.
MPL is pretty rare. I am CALR+. They tell me that that "flavor" of ET has slightly better outcomes. Higher platelets but fewer stroke incidents.
Just for fun, my vet friend tells me that dogs get ET, but seems to be a benign condition in canines that doesn't cause the clot issues it does in people.
My doctor has taken time to figure out the problem with my raised platelets. I have been seeing my GP since March this year. Several test done. Today he rang me in and told me CARL Exon 9 Mutation and JAk2 V617F Mutation have been detected in my blood sample. He said i have ET but he needs me to do a bone marrow biopsy before he can put me on medication. My platelets have been rising since 2021 and today reading was 848. He asked me to return in 3 weeks time for the bone marrow procedure. In the meantime she put me on 100mg aspirin.
You have been through so much. Thank you for sharing your encouraging story.
I too have the MPL driver . . . have been told it's difficult to rein in. I'm up to 10 500mg HU capsules/week.
Warmest good wishes to you.