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Anyone dealing MDS and how are you doing?

Blood Cancers & Disorders | Last Active: May 9 12:29pm | Replies (23)

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@pmm

@kva111
Welcome to the Mayo Clinic Connect. I try to stay in my lane when responding to posts and first I must proclaim ignorance about MDS. I’m glad that you have your appointment on the 17th.
The decisions about treatment are always complex as we humans are complex and different from one another in how we are impacted by
disease. You’ll have some important discussion once you are seen by your hematologist/oncologist. You’ll get information about the disease itself, what you can expect in the way of symptoms and what your treatment options are.
I’d encourage you to write your questions down in advance and if possible, take a trusted friend or family member with you for the discussion. Speaking for myself, I often forget to ask salient questions or sometimes even forget how those questions are answered by the physician. I’m grateful to have my family support with me during those discussions because they can prompt my memory or even ask questions themselves that I haven’t thought of yet.
When I am deciding about treatment options I want to know how the treatment will make me feel, how long do side effects last, and what can be done to mitigate any unpleasant side effects. I am always mindful that at almost 72, quality of life is important to me.
Here is a little information. I generally advise against deep diving into the Dr Google pool of information until you have had an in person visit with your expert provider, especially if it makes you anxious. Anxiety is not your friend.
https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/diagnosis-treatment/drc-20366980
Will you let me know how it goes on 5.17?
Hugs.

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Replies to "@kva111 Welcome to the Mayo Clinic Connect. I try to stay in my lane when responding..."

Patty: I appreciate your advice. I have stared a list of questions I plan to ask the Doctor at Levine. My wife will be at my side during the consultation. She will have many questions as well. My online queries have mainly been about what is this disease, what is this chemotherapy medication, what is stem cell transplant and so forth. I will let you know how the consultation goes. Thank you for your interest.