← Return to Anyone dealing MDS and how are you doing?

Discussion

Anyone dealing MDS and how are you doing?

Blood Cancers & Disorders | Last Active: May 9 12:29pm | Replies (23)

Comment receiving replies
@kva111

I was diagnosed with MDS-IB2 on April 11, 2024. I signed a consent form to begin chemotherapy with INQOVI. My Dr. says this is preparation for stem cell transplant. I have not started chemotherapy yet. I have an appointment at LEVINE cancer center in Charlotte, NC on May 17, 2024. I am 76 years old. I feel perfectly normal. I have low WBC, RBC, and platelets. Right now I am trying to educate myself about my disease and treatment options.

Jump to this post


Replies to "I was diagnosed with MDS-IB2 on April 11, 2024. I signed a consent form to begin..."

It's great that you are getting educated ahead of time - it helps you ask more pertinent questions. It can't hurt to get a 2nd opinion as well. My hematologist recommended that I do, and I was glad to have another set of eyes and another source of information. Is LEVINE a Center of Excellence? If not, I would recommend finding one near you and getting a 2nd opinion. God bless you in your journey!