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Peripheral Neuropathy - Shooting Foot Pains at Night

Neuropathy | Last Active: May 8 3:33pm | Replies (15)
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@dlydailyhope

@tlund
Have you been formally diagnosed with PN? Do you know the cause? Did they do EMGs/nerve conduction studies? Were you tested for small fiber neuropathy with a skin punch biopsy? I have PN and Safe and take 100 mg Gabapentin at night, alpha Lipoic acid and Acetyl l carnitine supplements for nerve pain, Calm magnesium supplement to help nerves, especially at night, Salonpas lidocaine pain patches, capsaicin or lidocaine creams, etc.

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Replies to "@tlund Have you been formally diagnosed with PN? Do you know the cause? Did they do..."
bowersra | @bowersra | May 8 11:21am

What is safe
I have had skin punch (3)
One on my back upper shoulder
One right above my knee
One three inches from ankle
Outside ankle

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bowersra | @bowersra | May 8 11:38am

I have tried them all
Really ever cream, pill…
Lyrica cause double vision right away.. grabention makes everything worse
Hot and cold treatment help some…
When you have neuropathy ever Doctor doesn’t make sure there aren’t other problems that are Cather pain..
I also have both ankle very stiff…

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tlund | @tlund | May 8 12:19pm

Thank you! Yes, diagnosed with bilateral idiopathic peripheral neuropathy, even though nerve conduction studies/EMGs showed no damage to long nerves and skin punch biopsy at Johns Hopkins did not support small fiber neuropathy.
Like you, using Salonpas lidocaine patches - they help with needles-and-pins sensations in the feet. A new doctor has started me on alpha lipoic acid and vitamin B1. She also prescribed magnesium - seems to upset my stomach, but may try it again since you've had some luck with it. I tried Rugby capsaicin cream but feet had burning sensation when I exercised, and no help on night pains.
Appreciate your experience and advice!

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