I see this post was from a couple years ago but I am having issues.
I have been very sick for a year now. None of the doctors would listen to me. I went to the er and urgent care several times with no answers. Finally my gastroenterologist listened after I lost 30 pounds and did a stool test. I have been diagnosed with EPI. They did an ultrasound and found calcium deposits over my entire pancreas. Two areas were biopsied and came back normal. I was also diagnosed with lymphocytic colitis. I have been on steroid treatment for that for 6 months and started enzymes in January. I am still losing weight and feel as if none of it is helping my symptoms. I was in the hospital in December for pancreatitis. I have had it a couple times since then but refuse to go to the hospital as it seems to me they have no idea what they are doing.
I need some relief of this pain and the symptoms. Any ideas? I have tried everything diet wise as far as small low fat meals, no alcohol.
@gman007 I'm interested in your story in that I see in a previous post that you had a neuroendocrine tumor removed - is that correct? I have had 3 NETs removed from the duodenal bulb, so I'm interested in other NET folks. Have you had any recurrences? Also, you mentioned taking anti-oxidants - would you mind sharing what you specifically take? Teresa
For 13 months I have been taking Neumi Swish which supplies glutathione, an anti-oxidant. It seems to have subtlety reduced my morning aches and pains (I'm 75). 18 months ago I was diagnosed with a NET on my pancreas - only 1.2 CM long. Recently, another CT scan showed small growth of .4cm. Because it was on the tail of my pancreas my cancer doctor suggested removing it along with a small section of my pancreas. This was done on April 2 and within 4 weeks all my incisions were healed and no more post-op pain or swelling. No further treatment - just a one year follow up to see if any reoccurrence.
I am back to playing weekly squash. My Neumi promotors indicate that my quick recovery was likely the result of my 2x daily Neumi swishes (in my mouth, then swallow). I can give you a personal contact with my Neumi rep. Sheryel and you can read about it online at Neumi.com
Cheryl, Volunteer Mentor | @cehunt57 | May 7 10:55am
I scrolled through this discussion from 2017 - present. The word pancreatitis caught my attention. I know what that is but I’m less familiar with NETs ( plus I don’t like acronyms). Could someone school me on this and also explain the connection to pancreatitis?
Also @markewer I’m happy for your success with the Neumi Swish just remember that on Mayo Clinic Connect we can’t diagnose or prescribe. Wouldn’t want any members to misunderstand. Thank you for sharing your success story.
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I see this post was from a couple years ago but I am having issues.
I have been very sick for a year now. None of the doctors would listen to me. I went to the er and urgent care several times with no answers. Finally my gastroenterologist listened after I lost 30 pounds and did a stool test. I have been diagnosed with EPI. They did an ultrasound and found calcium deposits over my entire pancreas. Two areas were biopsied and came back normal. I was also diagnosed with lymphocytic colitis. I have been on steroid treatment for that for 6 months and started enzymes in January. I am still losing weight and feel as if none of it is helping my symptoms. I was in the hospital in December for pancreatitis. I have had it a couple times since then but refuse to go to the hospital as it seems to me they have no idea what they are doing.
I need some relief of this pain and the symptoms. Any ideas? I have tried everything diet wise as far as small low fat meals, no alcohol.
For 13 months I have been taking Neumi Swish which supplies glutathione, an anti-oxidant. It seems to have subtlety reduced my morning aches and pains (I'm 75). 18 months ago I was diagnosed with a NET on my pancreas - only 1.2 CM long. Recently, another CT scan showed small growth of .4cm. Because it was on the tail of my pancreas my cancer doctor suggested removing it along with a small section of my pancreas. This was done on April 2 and within 4 weeks all my incisions were healed and no more post-op pain or swelling. No further treatment - just a one year follow up to see if any reoccurrence.
I am back to playing weekly squash. My Neumi promotors indicate that my quick recovery was likely the result of my 2x daily Neumi swishes (in my mouth, then swallow). I can give you a personal contact with my Neumi rep. Sheryel and you can read about it online at Neumi.com
I scrolled through this discussion from 2017 - present. The word pancreatitis caught my attention. I know what that is but I’m less familiar with NETs ( plus I don’t like acronyms). Could someone school me on this and also explain the connection to pancreatitis?
Also @markewer I’m happy for your success with the Neumi Swish just remember that on Mayo Clinic Connect we can’t diagnose or prescribe. Wouldn’t want any members to misunderstand. Thank you for sharing your success story.