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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
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@nomikins

I’m very interested to hear how you make out with Aldara. I have been hearing that surgery is the best option, especially for those that are relatively young and healthy, because it has the best efficacy when it comes to recurrence. (The Pagets doesn’t come back as easily, supposedly.) but who knows? So you are on Aldara because no one where you are does Mohs for vulva? If you want to come to Bay Area, I can link you up with a great Mohs team!

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Replies to "I’m very interested to hear how you make out with Aldara. I have been hearing that..."
biancasmythe | @biancasmythe | May 13 9:26pm

I am on Aldara for 2 reasons only: one, my son is in his final year of school and I have decided to only tell him about my condition after his final exams on November 8. The second reason is indeed because no one here really understands EMPD vulva and no Moh’s surgeon has experience with surgery on the vulva. I would be most grateful to be put in touch with a team as I am 56 and in otherwise good health

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biancasmythe | @biancasmythe | May 21 8:50pm

Please let me know about the Mohs team in the Bay area that you mentioned

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