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Looking for recommendations of doctors with expertise in CMML

Blood Cancers & Disorders | Last Active: Jul 3 10:02am | Replies (14)
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@edb1123

I have a friend recently diagnosed with CMML-1 and she may request a second opinion from Mayo. Her current doctor doesn’t plan to start any treatments and her next appointment is in 4 months. She will only get blood tests every 2 months. Is this standard for CMML? She is concerned that nothing is being done to treat her and I am too. Can anyone share their experience with this disease?

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Replies to "I have a friend recently diagnosed with CMML-1 and she may request a second opinion from..."
Lori, Volunteer Mentor | @loribmt | Jul 3 8:33am

Hi @edb1123 I was wondering how your friend is doing with her CMML diagnosis? Because CMML is considered a chronic form of leukemia it is generally slower to progress than the AML that you and I had. Depending on the status of your friend’s CMML, it may be that 2 months is appropriate for her condition. The doctor will view trends in her blood numbers and monitor for changes that way. If they see any progressive upward or downward movement after subsequent tests they will reassess. Down the road there are treatment options available, the ultimate maybe being a BMT which you’d be able to offer her a lifeline with your experience. How are you doing these days? How are your gvhd issues?

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